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Network structure 

The Epidermolysis bullosa network is concerned with the cause, diagnosis, prophylaxis and treatment of Epidermolysis bullosa (EB). EB is a group of inherited skin disorders, which are characterized by the formation of trauma-induced blisters of the skin and mucous membranes.

The butterfly

The skin of EB patients is like the wing of a butterfly – very sensitive, fragile, and easily damaged. Hence the connection between EB and the butterfly symbol, which is now internationally recognised.